The France Alzheimer Endowment Fund (we) attaches great importance to the protection of your personal data and undertakes to ensure that it is processed in strict compliance with Applicable Laws and Regulations on the Protection of Personal Data as defined in Article 1 Definition of this Privacy Policy.

This Privacy Policy established by the France Alzheimer Endowment Fund explains how we process, transfer and protect the personal data of visitors to the website and of our donors and potential donors (you).

This Privacy Policy will enable you to better understand how your personal data is used and how you can exercise your rights.

This Privacy Policy is applicable to any processing of personal data implemented by the Fonds de Dotation de France Alzheimer through its website fondsdotationalzheimer.org (hereinafter the “Website”).

Main definitions

For the purposes of this Policy, it is agreed that words beginning with a capital letter, whether in the plural or singular, shall have the meanings set out below:

“Consent” means any free, specific, enlightened and unambiguous expression of will by which the Data Subject accepts, by a declaration or by a clear positive act, that his Data are subject to Processing.

“Recipient” means the natural or legal person, public authority or any body that receives Personal Data, whether or not it is a third party.

“Applicable Laws and Regulations on the Protection of Personal Data” means Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of individuals with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (hereinafter “RGPD”) and Law No. 78-17 of 6 January 1978 on Data Processing, Data Files and Individual Liberties, as amended.

“Personal data” or “Data” means any information relating to an identified or identifiable natural person (hereinafter referred to as the “Data Subject”). The Person concerned is identifiable when he or she can be identified directly or indirectly, in particular by reference to an identifier (for example: name, telephone number, date of birth, online identifier, identification number, specific element specific to his or her physical identity, etc.).

“Processing” means any operation involving Personal Data and in particular the collection, recording, organization, use, communication by transmission, dissemination or any other form of making available, alignment or interconnection, limitation, erasure or destruction.

“Responsible for the Processing” refers to the natural or legal person, public authority, service or other body that alone or jointly with others, determines the purposes and means of the Processing, unless expressly designated by legislative or regulatory provisions relating to this Processing.

“Sub-processor” means the natural or legal person, public authority, service or any other body that processes Personal Data on behalf of the Controller.

Principles relating to the protection of Personal Data

The France Alzheimer Endowment Fund undertakes to comply with the provisions of the Laws and Regulations on the Protection of Personal Data applicable to it. The Personal Data concerning you that we hold must be :

• processed in a lawful, fair and transparent manner. We carry out Data Processing in good faith and in an informed manner;
• collected only for specified, explicit and legitimate purposes communicated to you and not used in a way incompatible with those purposes (unless we have informed you of the further Processing of your Personal Data for another purpose and indicated the legal basis for such Processing);
• adequate, relevant and limited to what is strictly necessary and useful to achieve the purposes; accurate and, if necessary, kept up to date;
• kept only for a period not exceeding that necessary for the purposes for which they were collected;
• processed in such a way as to guarantee the security, integrity and confidentiality of the Data by means of appropriate technical and organizational measures and, in particular, to prevent it from being distorted, damaged or accessed by unauthorized third parties.

Who is the Person Responsible for the Processing of your Personal Data?

The France Alzheimer Endowment Fund is the person responsible for processing your personal data.

You can contact us at the following coordinates:

Fonds de dotation France Alzheimer

11 rue Tronchet

75008 PARIS

As well as by email at the following address: communication@Francealzheimer.org

For what purposes and on what legal grounds do we process your Personal Data?

A Processing Purpose is the objective or reason why we process your Personal Data.

Through our Website, we may process your Personal Data for the following purposes:

• Sending a newsletter by email. This Processing is based on your Consent;
• The use of cookies and the improvement of our Website. This Processing is based on the Consent of visitors to the Website where required by Applicable Laws and Regulations on the Protection of Personal Data. Where the Consent of visitors is not required, Processing may take place on the basis of our legitimate interest in order to improve the navigation on the Website.
• The management and collection of your donations. This Processing is based on our legitimate interest so that we can honor your donations and manage the donations.
• The sending of your tax receipts. This Treatment is based on the respect of our legal obligations.
• The management of the relationship with our donors. This Treatment is based on our legitimate interest in order to transmit our institutional communications to you and to allow you to commit to our side with a view to promoting research against Alzheimer’s disease and related disorders;
• Responding to your requests for information about our mission and actions. This Treatment is based on our legitimate interest to inform you about the France Alzheimer Endowment Fund.
• To carry out anonymous improvement statistics. This Treatment is based on our legitimate interest in order to improve our communications, our calls for donations and to manage the evolution of the donations made.

We inform you that if you refuse the collection of your Personal Data, we may not be able to honor your donations in the context of research against Alzheimer’s disease and related disorders and may not be able to send you communications related to the France Alzheimer Endowment Fund.

How long do we keep your Personal Data?

In accordance with Applicable Laws and Regulations on the Protection of Personal Data, Personal Data collected by the France Alzheimer Endowment Fund will be kept in a form allowing the identification of visitors and/or donors for a period not exceeding that necessary for the purposes for which it is processed. Thus, by way of illustration, we keep your Personal Data for a period not exceeding :

• A period of 13 months for the use of cookies and the improvement of our Website;
• The duration of the Processing of your request increased by a period of (12 months) for the pursuit of the purpose of statistical analysis of the processing of requests;
• The duration of legal conservation of the documents related to the management of donations;
• The duration during which you have given us your email address for the sending of the newsletter and as long as you do not unsubscribe or withdraw your Consent.

What categories of Personal Data are processed?

The Personal Data that we collect through our Website are as follows:

• Identifying data: title, surname, first name
• Contact data: postal address, e-mail, telephone number(s)
• Donation management data: donation history, donor number, contact information, claims, requests for information, donation amount, bank details, date of the donation
• Any connection data

Who are the Recipients of your Personal Data?

We transmit your Personal Data:

• There is no transmission of data to volunteers, that is why I delete the paragraph
• To the strictly authorized personnel of France Alzheimer’s Technical Subcontractors, in particular concerning the management of individuals interested in receiving the newsletter;
• To the competent authorities upon request, and in particular to public bodies, exclusively to meet legal obligations, court officers, judicial officers and bodies responsible for debt collection to the extent permitted by applicable law.

The France Alzheimer Endowment Fund may also use audience analysis services.

The Website is hosted on OVH’s servers.

Under no circumstances will your Personal Data be transmitted to commercial or advertising actors.

Are there Data transfers outside the European Union?

The persons or authorities that may receive your Personal Data for the purposes of the Processing set out in Article 4 are all located in the European Union. We do not transfer any Personal Data to recipients or authorities/bodies located in countries outside the European Union.

In the event that we transfer Personal Data outside the European Union, we undertake to make every effort to ensure a high level of protection for Data transferred from the European territory to third States, by using adequacy decisions or appropriate safeguards in accordance with Articles 45 et seq. of the DPMR.

What rights do you have?

Under the Applicable Laws and Regulations on the Protection of Personal Data, you have :

• The right to withdraw your Consent at any time when the Processing of your Personal Data is based on the Consent without such withdrawal affecting the lawfulness of the Processing of your Data carried out prior to the withdrawal of your Consent;
• The right to access your Personal Data and to obtain a free copy (except for repetitive or excessive requests) and to obtain a description of the main characteristics of the Processing carried out in relation to your Personal Data;
• The right to rectify as soon as possible your Personal Data when they are inaccurate, incomplete or outdated;
• The right to erase your Personal Data as soon as possible, under certain conditions (the request must be based on legitimate reasons referred to in I. of Article 18 of the RGPD);
• The right to ask us to limit the Processing of your Personal Data within the limits provided for by the GDR;
• The right to request the portability of your Personal Data when the Processing is based on your Consent or on the execution of a contract;
• The right not to be subject to an automated individual decision (including profiling);
• The right to object, at any time and for legitimate reasons related to your particular situation, to the Processing of your Personal Data;
• The right to lodge a complaint with the CNIL;
• The right to contact us with a view to defining specific guidelines regarding the fate of your Personal Data after your death.

For any question relating to the Processing of Personal Data by the France Alzheimer Endowment Fund or to exercise any of the rights listed below, you may contact: j.berrouet@Francealzheimer.org

What security measures are in place to protect your Personal Data?

We undertake to take all useful precautions and all appropriate technical and organizational measures to guarantee the integrity and confidentiality of the Personal Data as well as a level of security appropriate to the risk presented by the Processing, and in particular, to prevent it from being destroyed, lost, altered, stored or otherwise processed, disclosed in an unauthorized manner or accessed accidentally or unlawfully by unauthorized third parties.

In the event of a violation of Personal Data likely to create a risk for the rights and freedoms of individuals, we undertake to notify the CNIL of the violation as soon as possible (no later than 72 hours after becoming aware of it).

Use of Cookies

The Website may use cookies. A cookie is a small text file or set of data that a website can send or save on your computer when you visit it.

The Website is likely to use cookies in order, in particular, to draw up statistics on the browsing of the Website.

You can set cookies on your browser and give your consent to the use of cookies through the cookie banner that you will see when you connect to the Website.

Please note that without certain cookies such as the strictly necessary cookies, the Website will not be able to function properly.

Change/Amendments to the Privacy Policy

We may modify the Privacy Policy at any time, in particular to take into account legal and regulatory changes.

The prevailing version is the one accessible online at fondsdotationalzheimer.org. All visitors are therefore required to refer to the version accessible online at the date of their visit to the Website.

The Data will always be treated in accordance with the Privacy Policy in force at the time of collection, unless a mandatory legal requirement would otherwise provide and would apply retroactively.